Lyme Disease
About Lyme Disease
Learn about Lyme Disease, why it has medical communities divided, and what really goes on in the bodies affected by it.
Posted 6 days 2 hours ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey, Learn about Lyme, Co-infections, Complications
It seems I have to answer this, totally emotionless, once and for all. I may paste it on my forehead and the signature tagline in my e-mail. I get asked it so many times that my answer seems canned. And despite absolutely loving that I can inspire hope in so many via the phone and e-mail, prospective patients need a place to go and read this for themselves. Over and over if they wish.....
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Posted 2 weeks 2 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
I am still marveling at the color copies of my SPECT brain scan, although somewhat in disbelief. My passion for photography does not come close to producing pictures like the ones that manifested from last week’s scan, just days before I left India. In fact, I could not intentionally capture colors so vivid, or an image so real and telling of an illness that has now officially lost its battle, little by little and day by day since my first stem cell injection December 11, 2007.
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Posted 4 weeks 2 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
I have been trying to post an update for days now with miserable success. I’ve opened numerous new documents and none of the words that my fingers type fit the page just perfectly. I have had two spinal procedures in the last five days chocked full of memorable moments; all which have rendered me wordless (and not even necessarily in some profound way). They have come and gone with no concrete ideas on what is important or relevant enough to blog about.
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Posted 6 weeks 10 hours ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
Drip. Drip. Drip.
I stare at the IV bottle of embryonic stem cells running quickly down the tubing into my arm. Everything feels calm and music from my ipod is helping to escort my baby cells into my body. It feels like a movie scene where opera should be playing in the background. I close my eyes and try to visualize the stem cells working. My default vision is of tiny little sea monkeys swimming (trust me, I’d never make this up) from damaged cell to damaged cell finding new cell homes to refurbish and rebuild. I try to get this crazy picture from my head, but the sea monkeys stay and I figure it’s not worth fighting.
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Posted 6 weeks 2 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
As I rise early today (yes, again), I can feel from my room that the streets are wet. The smell of Indian rain seeps in my windows. It’s a distinct scent -- not good or bad. It’s just there. Last night brought thunderstorms that rattled and lit the skies. I watched through a gap in my curtains waiting for it to subside so I could fall back asleep. Instead, I stayed awake listening to howling dogs and the occassional tuk-tuk whiz by until sunlight. The horn-honking on the street today is at an all-time low. My world has that kind of “earthquake weather” feeling that makes you uneasy, but is too superstitious to actually consider as a threat.
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Posted 10 weeks 6 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
"Everything is negative," he says as he's skimming a piece of paper in my file. His eyes are wide and happy.
Negative is good, I think. But I'm not used to hearing it in relation to much these past years so I'm temporarily confused.
"What is negative?" I ask excitedly.
"Oh, you didn't get the report? You should have gotten a full report." He goes on and on wasting time confirming my address and guessing about why I was never notified. But he still looks happy, so I'm almost ok with the ridiculous delay if this is about to be good news.
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Posted 13 weeks 5 hours ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
Recent news has landed Dr. Geeta Shroff and patient, Perry Cross, on U.S. and Australian TV channels and all over the Internet.
Perry, a C-2 quadriplegic is breathing on his own for the first time in 14 years. Although many of Dr. Shroff's patients have gotten publicity in their hometowns, this one is receiving the nationwide (and beyond) attention it deserves.
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Posted 13 weeks 2 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
My baby stem cells are just over five months old. Sometimes, I can't believe it's been that long since my first injection, as I sat anxiously on my favorite brown blanket sprawled over my hospital bed. It feels like I went from sick, to India, to better, to home. And it all happened almost in a blink compared to what I had been through previously.
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Posted 18 weeks 1 day ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
I've caught myself accidentally wincing a few times lately. I'm not proud to admit this, but it's a consequence of full disclosure. My antibiotic shots have been making it less than pleasant to sit, roll over in bed, or get up from any "not already up" position I might be in. The last time I did this was May through October of last year. It's like my muscles remembers the needles. I'm not even a week into my routine and already, I have a boycotting butt. Some days, I swear it is trying to make my life difficult (clearly, on these days, I have gone crazy).
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Posted 19 weeks 2 days ago by Amy B. Scher
The India Story, Lyme Disease, Stem cells, Amy's journey
My car looks like I am using it to stockpile drugs again as I head out of town. A neatly organized caddy (okay, it's an Amazon book box) full of everything I need is sitting on my front seat in perfect reach for dispensing while I drive. I consider seat belting it in to protect my assets, but the quirky side of me worries if I get pulled over by a cop, this odd behavior alone would warrant a ticket.
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